The newly released module, My Eurocrine,is a novel feature to the database, which provides the user with additional unique flexibility to tailor the database to local needs. With this new feature you can create your own variables for collection of data, perform observational studies, and randomised controlled trials (RCT:s).
- Create your own variables
- Select the time frame
- Define screening criteria
- Set up inclusion / exclusion criteria
- Attach documents (as required)
- For RCT:s; Automatic randomisation
- Ínvite other clinics to join
The Eurocrine registry reached 1 000 registered operations in the start of 2016, and have now passed 1 500 operations. There is still time for participation in the first analysis - if your clinic start now. 24 clinics from 12 countries are participating with data.
The collection of data has started on all diagnoses groups: thyroid, primary and secondary hyperparathyroidism, paraganglioma, adrenal tumours, and GEP-NET. The following working languages are available: English, French, German, Italian, Polish, Spanish, and Turkish.
To sign up and for enquiries - Please contact the coordinator for the project.
Identify best practice – Compiled data makes it possible to compare effectiveness in preoperative work-up, operation, surgical treatment, and outcome.
Benchmark yourself – Compare your outcome data with that of your country and the rest of Europe.
Start research projects – Collaborate across Europe in unique research projects.
Define variables to collect – Choose extra variables to collect and predefine lead texts, field types, formats, and value intervals.
Make your own surveys – collect extra data for groups of diagnoses within a certain time period, with the variables you create yourself
Take part in a European network.
Free of charge – Until the end of 2016, participation is free of charge, with no obligation to continue. From 2017, financed by membership fees (non-profit).
The work on the physical registry has been ongoing since August. The included disease modules for Thyroid, Parathyroid, Adrenal, Paraganglioma, and Neuroendocrine Tumours in the gastrointestinal tract (GEP-NET) have been developed, and are being β-tested by partners. Language functions for additional languages, apart from English, will be available. The registry will contain attractive out data modules. Time series for important medical data will make it possible to compare local user data (Department/Hospital), with National data and European Data. The dashboard after login, is partly shown in the picture below. A demonstration database will be available for presentation at meetings, and training via Webcast.
The launch in January 2015 is planned to start with a smaller number of departments, adding on new departments gradually.
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